about us

Positively UK provides peer-led support, advocacy and information to everyone living with HIV to effectively manage any aspect of their diagnosis, care and life with HIV

A BRIEF INTRODUCTION

We protect the health and wellbeing of people living with HIV by providing tailored peer support, promoting positive attitudes and equitable access to health for people living with HIV. Positively UK advance education and research about health, particularly in relation to HIV and campaign against HIV discrimination, increasing the involvement, voice and visibility of people living with HIV in all aspects of life. Positively UK provides peer-led support, advocacy and information to everyone living with HIV to effectively manage any aspect of their diagnosis, care and life with HIV. We believe that people living with HIV are best placed to advocate for their own needs. Working in partnership with the NHS, our peer work is integrated at 11 clinics across London. We run a range of peer-led support groups for women, heterosexual men and women and gay men. We host events and workshops for recently diagnosed people – those who are planning parenthood or currently pregnant, including talks with activists, clinicians and life coaches with the purpose of supporting people and help them meet peers and form meaningful friendships. We offer training to people with HIV to deliver efficient peer support and collaborate with clinics and voluntary organisations around the UK to establish peer support programmes.

Our research aims to influence policy and decision makers in order to improve systems and services for people living with HIV.  We host events such as the biennial Conference of People Living with HIV and are a stakeholder of NHS England’s Clinical Reference Group for HIV and a strategic partner of the Department of Health through the Women’s Health and Equality Consortium. Our staff are community representations on the Independent Advisory Group on AIDS, the National HIV Nurses Association, London Fast Track Cities Initiative and also UKCAB.

Our front-line services are provided by trained staff and volunteers who are living with HIV and best placed to support others, by using their personal and practical understanding of the health and social implications of living with a long-term condition that still carries stigma within society. Currently 85% of our staff team, including our CEO and Deputy CEO, and 95% of our volunteers are living with HIV. By our constitution, at least half our board of trustees must also be living with HIV. As members of the organisation, beneficiaries are responsible for agreeing annual accounts and electing the board of trustees at our Annual General Meeting.

Our history

In 1987 two women living with HIV, after finding that no services for women existed, took matters into their own hands, placing hand-drawn posters at clinics and inviting other women to meet in their living room. From this, the charity Positively Women was founded, with its ethos of peer led support. Over time new communities came seeking peer-led support including parents, heterosexual men, newly diagnosed gay men, and young people. Today we still we believe that the emotional and practical needs of people living with HIV can only be truly understood and addressed by the meaningful involvement of people living with HIV. Now Positively UK, our peer support services for women, men and young people sit alongside our campaigning and policy work to improving services and care for people living with HIV in the UK.

Our Mission

To share support and solutions within HIV and across the health and social care sectors so that people living with HIV receive effective care and support, in order to achieve the best health and quality of life.

Our VISION

Everyone living with HIV has access to effective peer support to increase their knowledge, confidence and connections, to improve their health and quality of life. We want all people living with HIV to have access to peer-led support by 2020.

Knowledge

Advancing education and research about health, particularly the health of those who have HIV and any associated health condition.

CONFIDENCE

Protecting the health of people by the provision of support services to people living with HIV and any associated health condition.

CONNECTION

Providing person-centred advice and assistance to benefit people living with HIV and any associated health condition.

Meet OUR TEAM

Our front-line services are provided by people living with HIV, who are best placed to support others, using their personal and practical understanding of the health and social implications of living with HIV.

Silvia Petretti

Silvia Petretti

Interim CEO

Silvia is a woman living with HIV and advocate for the human rights of people living with HIV.

Garry Brough

Garry Brough

Deputy CEO

Garry, co-founder of the Bloomsbury Patients Network in 1999, joined Positively UK in 2015 to co-ordinate Project 100.

Beatrice Osoro

Beatrice Osoro

Statutory Contracts Team Manager

Beatrice joined Positively UK in 1995 first, as a service user, then worked as a case worker coordinating HIV.

Sara Fraser

Sara Fraser

Services Lead

Sarah joined positively UK as a volunteer coordinator in 1997 after 7 years experience of volunteering at The Landmark HIV centre in London

Joyce

Joyce

Senior Case Worker

Joyce joined the organisation in 1997, first as a volunteer, supporting the administration team.

Chris O’Hanlon

Chris O’Hanlon

Gay Men Project Coordinator

Chris is our recent addition as the Gay Project Coordinator here at Positively UK.

James Morris

James Morris

Project 100 Training Co-ordinator

James has joined the organisation in June 2016.

Helen Rogers

Helen Rogers

Women’s Support Worker

Helen joined Positively UK in October 2016. She was previously with the Positive Balance debt advice team at Lighthouse South London.

Diana Onyango

Diana Onyango

Women’s Support Worker

Diana has recently joined the team as a Women’s Project Coordinator starting in December 2016.

David King

David King

Peer Involvement and Volunteer Coordinator

David joined Positively UK in October 2017 as part of the Youth Project and is now the Peer Involvement and Volunteer Coordinator.

Tania

Tania

Youth peer support worker

Tania, a passionate youth peer case worker who joined in 2016, is focused on equipping young people with knowledge, skill and confidence.

Darren Good

Darren Good

Data and IT Support Officer

Darren joined Positively UK on a freelance basis in April 2014. He is passionate about supporting charities.

Virginia Cucchi

Virginia Cucchi

The Seeds Project Coordinator

Virginia is involved in many initiatives, from grass-root initiatives and activism to policy forums and health research.

Neo Moepi

Neo Moepi

Catwalk4Power/Positive Talks Coordinator

Neo Moepi is currently working as Coordinator at PositivelyUK for the Catwalk4Power/Positive Talks Projects.

Christopher Buckley

Christopher Buckley

Homerton Peer Navigator /East London Case Work Coordinator

Chris joined Positively UK in November 2017 initially working as a Peer Navigator in Homerton hospital on a part-time basis.

Ellie Angus

Ellie Angus

Fundraising and Communications Manager

Ellie is supporting Positively UK with communication and bid writing with a background in fundraising and programme management.

Horcelie

Horcelie

Youth Project Coordinator

Horcelie is our youth project coordinator. Horcelie is passionate about youth development, especially in the health sector.

Janine Read

Janine Read

Homerton Peer Navigator

Our peer navigator Janine joined Positively UK in November 2013. She is based at the Jonathan Mann clinic at Homerton Hospital.

Julie Willis

Julie Willis

Case Worker Coordinator

Julie joined Positively UK as a peer mentor. She is passionate about supporting people living with HIV in their life journeys.

Fraser Serle

Fraser Serle

Volunteer and Trustee for PositivelyUK

Fraser, a member of the Board of Trustees for Positively UK, has spent 30 years working in the public health field in a range of roles.

Meet OUR TRUSTEES

Paul Decle

Paul Decle

Chair of the Board of Trustees for Positively UK

In 2009 Paul was invited to join the board of Trustees at Positively UK and subsequently appointed Chairperson in 2018.

Joan Channon

Joan Channon

Trustee

Joan Channon is Positively UK's trustee

Kevin Baker

Kevin Baker

Kevin Baker, Trustee

Kevin has been a trustee at Positively UK since 2014, having first been a service user and a peer mentor.