Publications

Publications produced by Positively UK including policy work and reports, information for service users, and the now defunct magazine

The Impact of the Welfare Reform on People Living With HIV in England

Tuesday, April 1st, 2014

Key findings in the report are:

  • The number of benefit changes individuals go through make a significant difference to their health and well-being.
  • The medical assessments of PIP and ESA are failing to addressing the psychological impact of HIV and the variable impact of the condition on day-to-day life.
  • There are significant reductions in the services offered by HIV charities.
  • Women from black and minority Ethnic communities, Latin Americans and white gay men over 50 are hardest hit by welfare reform.
  • There are serious mental health issues caused by the shame and stigma that respondents feel when applying for benefits.

A new report highlighting the damaging impact welfare reforms are having upon people living with HIV.

Based on a survey of 287 people diagnosed with HIV across England the report found that two-thirds of were affected by benefit changes, with nine out of ten reporting poorer health and limited access to HIV care as a result.

Handling of the reforms is criticised in the report, in particular assessments and their failure in supporting some of the most vulnerable in our community. In the words of one person living with HIV, “I had to appeal against my medical assessment. When it went to appeal it was given to me and not only that they decided I should have been in support group of ESA. This is so stressful and makes problems worse when having to appeal and money reduced until it is sorted.”

As a result the Counterpoint Policy Alliance is launching a new campaign ‘No-one should leave the clinic hungry’ to raise awareness of these problems. “We need to bring this issue to the attention of the NHS, MPs, Local Authorities and all those who can help change these punitive policies. Anyone who doesn’t have enough to eat will suffer poor health, and this is worse if you are living with HIV in getting the right foods to keep fit and healthy. If we don’t act now this problem could become a crisis for many people living with HIV.”

The report was carried out by the Counterpoint Policy Alliance, a collaboration of three leading HIV charities: Naz Project London, Positive East and Positively UK.

You can view and save the report as a pdf here.

Improving well-being

Wednesday, January 22nd, 2014

“..without Positively UK I would still be struggling…”

 

 

Downloadable .pdf version of Improving well-being: The effectiveness of peer support

The findings in our new report, Improving well-being: The effectiveness of peer support, are the result of research conducted to give us an in-depth insight into the role Positively UK’s peer-led services play in enabling people to better manage and improve their health and well-being.

The research focused on four key areas:

  • What is the perception of Positively UK’s peer support?
  • How does our peer support enable people to better manage their health?
  • How does this support complement clinical care?
  • How does this support impact on well-being?

We believe access to good quality peer support is vital for people living with HIV. This report sets out to demonstrate that, and how our work contributes to both the NHS Outcomes Framework in managing long-term conditions, and Public Health Outcomes Framework in improving well-being. We hope this report will be of benefit to all Positively UK’s donors in demonstrating the value of their investment, and as a useful resource to anyone seeking to establish local peer-led services. Nobody should face HIV alone, and we hope this research encourages everyone to understand the value of peer support now and in the future.

 

This project has been supported by an educational grant from MSD, and the secondment of A K Gilbert, researcher, and employee of MSD

States of Mind

Friday, September 20th, 2013

People living with long-term medical conditions experience higher levels of poor mental health and emotional well-being, and this is exacerbated for people living with HIV. This report, based on a survey of nearly 200 people living with HIV demonstrates the impact of mental health for people living with HIV socially and in managing their medication and highlights the lack of effective support. It concludes with recommendations to improve support and resources for people living with HIV to better manage emotional well-being.

You can view and save the report as a pdf here.

The Pregnancy Journey

Friday, September 20th, 2013

‘The Pregnancy Journey – a practical guide’ is full of information to help you have a healthy, happy journey through pregnancy to baby and beyond and includes many of the questions that are asked by women living with HIV who are planning to have a baby or are pregnant.

Our From Pregnancy to Baby & Beyond project supports prospective and expectant parents affected by HIV to achieve the best start to family life and is delivered by our Mentor Mothers, who have all started families whilst living with HIV themselves.

If you would like more information about HIV and Pregnancy or would like one-to-one support around starting a family, then give Angelina a call on 02077130444 or email her at anamiba@positivelyuk.org

HIV Behind Bars

Friday, September 20th, 2013

People diagnosed and living with HIV in prisons require specific support in managing their health and well-being. Positively UK’s review of health care and support provision in prisons identified cases of sub-standard healthcare with people refused HIV medications, denied confidentiality and experiencing discrimination.

Our report highlights these failings, alongside areas of good practice undertaken by prison healthcare teams, HIV clinics and the voluntary sector, and recommendations that need to be introduced to ensure people living with HIV in prison receive healthcare to quality standards of care.

Commissioning Effective Services for Women Living with HIV

Friday, September 20th, 2013

A guide for those whose work includes planning and commissioning health and social care services for women living with HIV including Clinical Commissioning Groups, Local Authorities and NHS Commissioning Board. The guidelines look at the needs of women living with HIV and how services should address these. Developed by Positively UK in partnership with the Women’s Health and Equality Consortium.

Primary Care Access

Thursday, September 19th, 2013

HIV now a long-term medical condition there is greater emphasis for people living with HIV to access more of their healthcare from primary care services in particular GPs. The report demonstrates that there are specific challenges for people living with HIV in managing healthcare across different settings. People living with HIV also face barriers and at times discrimination in accessing primary care. The report also provides examples of good practice and recommendations of how General Practice can improve services for patients with HIV.